Sickle cell anaemia - help at school
Fluid intake and temperature
- I need to drink lots of fluids and will need my water bottle near me at all times.
- I might need to use the toilet more often than pupils, so please let me do so discretely.
- Changes in temperature can trigger a crisis so I might need to stay in at break and lunch times and wear warm clothing, even in class.
- I can get very tired and might need time out, or use of the school lift, if there are lots of stairs.
- I need to set my own pace during PE lessons.
- If the outdoor session takes place on a cold day then provide an alternative PE activity.
- I need to take extra care following swimming and need to get properly dry and then dress warmly.
If I am off school sick
- If I am off school sick then please ask my friends to pass on any information or school work to me.
- If I am off for more than 2 days then email, post or ask my sibling to take home school work for me.
- I may be too sick to do it immediately but I can catch up when I feel a bit better.
- It is very difficult going back to school and not knowing what everyone else is doing.
- When I am so sick that I need to be in hospital, then please contact the hospital school teachers with details about my work.
- Ask my parents / carers to give you key names and contact numbers for people who help me manage my Sickle Cell Disease.
- Consideration needs to be given to allow more frequent toilet stops.
- For residential trips sensitive consultation should be undertaken in case of bed wetting.
- Find the location of the nearest Accident and Emergency department.
- Get information and permission for the administration of medication in case I have an acute crisis.
It makes a huge difference for me to know that there is an adult at my school who knows all about my condition and who I can talk to if I am worried or unwell.