Help me manage my muscular dystrophy at school

From 5 years onwards:

• I may move slowly and have difficulty running and climbing steps
• I may fall over frequently and have poor balance
• I might become tired in the afternoon and experience changes in strength during the week
• I may have difficulty participating in PE and other physical activities
• I might have a weak grip • My speech and language development may be delayed
• I might show a lack of co-ordination and shaky movements
• I may have a cognitive weaknesses, e.g. memory
• I might find it difficult getting up from the floor
• I might walk on the balls of my feet or on my toes

As I become older and my condition progresses:

• My ability to walk may become more limited and I may need a wheelchair
• My upper body strength may decline
• I might have trouble keeping up with writing

• I may need an individual learning plan (ILP)
• I may need adaptive or assistive technological devices in the classroom (such as a keyboard for writing)
• I may use a wheelchair or wear joint braces
• Sometimes I may use a ventilator for breathing
• I may need additional time to take tests and quizzes
• I may require additional time to get to other classes or use a lift
• I may need special considerations regarding lateness, absences, shortened school days, missed class work and homework due to physical therapy sessions
• I may need frequent bathroom breaks or visits to the school nurse for medications


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