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    We give information and advice to schools on supporting children with medical or mental health conditions

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    Practical advice on supporting children with the challenges they face at school

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    Information and advice on specific medical and mental health conditions

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ADVICE TO SCHOOLS FROM YOUNG PEOPLE

NEWSLETTER

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Read our latest NEWSLETTER Spring 2018

YOUR QUESTIONS

My son has eczema, asthma and food allergies

My son has eczema, asthma and food allergies

I need some advice, my son who is 6 has eczema and asthma and food allergies. School are aware of this but it’s a constant battle to get them to do things right for my son even with medical hospital letters. Well there was an incident regarding my son being given extra medicine which the school deny but my son still says happened even now. Well I told school I didn’t want them doing anything for him so I went in for 3 days to do it myself once a day when he’s supposed to be done 3 times a day. Well 2 days later he was given pizza at school for dinner which he’s not allowed to eat as he has an allergy to tomato based food. Which he wears a badge stating and school kitchen and office are aware of this but still happened. I’m not happy now with my son school and I take him home now to feed him and cream him at dinner times and also provide snacks and his own juice as he can’t have at school. I just don’t know what to do as I’m not happy with him there and don’t feel like they dealing with his needs as this keep happening and when I go into complain I get told to take my child out of school and that they do more than enough for my child I just don’t know what else to do. 

The situation sounds very stressful at present. I wonder if you could find a way to talk to school about your concerns. Is there a teacher or teaching assistant that you have a good relationship with? If there is perhaps you could request a meeting with the schools special needs co-ordinator or other staff member responsible for pupils with medical needs and ask if this person can also attend. Do you have a clinical nurse specialist at your local hospital? They often have a role in helping schools understand medical needs and how schools can work in partnership with parents. Some will attend meetings with parents at the school. Has the school drawn up an Individual Healthcare Plan? A review of this is a good way to talk about what is and is not working well in school. This can be a way to be both positive in relation to what is going well but also let school know what is not working. If you feel that the situation with school staff has broken down it may be helpful to contact the school governor responsible for special needs and explain your concerns.

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Home tuition for a year 10 pupil

Home tuition for a year 10 pupil

I need to sort home tuition for a year 10 pupil, it is a pivotal time for her and I am concerned it will affect her results - the LA's advice is email her some work - this does not feel good enough, how can I ensure she gets access to home tuition? 

It may be helpful to refer to the following: https://www.gov.uk/government/publications/education-for-children-with-health-needs-who-cannot-attend-school This outlines the duties placed upon the local authority to ensure that children and young people have their right to education protected.

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My daughter became ill and has not really attended school since

My daughter became ill and has not really attended school since

My daughter is 16, and started her A level course this year. Last year she became ill and has not really attended school since. She sat her GCSE's in the medical room crying. She's only attended school about 5 days in total this term.
The hospital are doing tests to find out what the problem is. She is in constant pain, and I'm at a loss what to do. I constantly contact the doctors and the hospital for answers, but all the time she is sick she is not at school. All the while they are looking into her illness, she is missing vital lessons. The school have been great, sending work home, but I’m worried they'll lose patience with her, and even though she works hard, she's losing vital interaction with her teachers. I'd appreciate any advice you can give.

Your situation sounds very stressful for you and your daughter. The situation you describe and the feelings you have at the moment are not uncommon. It sounds as if your daughter’s school is supportive by sending work home. Please do not feel that this is a favour, all schools have a duty to support access to education for students with a medical condition. The school should have a policy on this and certainly your education authority should have a policy statement. If you have not already met with the school to discuss the current situation and your concerns I would suggest that you do this. This meeting could be with the Head of 6th form and the schools special Education Needs Co-ordinator (SENCO). At this meeting you could discuss the best way for your daughter to plan her time in relation to the subjects she is studying at A level. It may be helpful to focus on one or two subjects until she is well enough to attend school regularly. Having subject teachers email addresses so that work can be sent for marking and your daughter can ask questions about specific tasks could be helpful. Having access to text books and other teaching resources can be discussed. Also, do you have a school learning platform so that lesson notes and resouces can be accessed by your daughter when at home?  Talking to the subject teachers directly can help in making sure that your daughter can undertake tasks appropriate to studying independently. With the rapid development of online teaching resources working independently when your daughter is feeling well enough can be interactive and fun. Stress about falling behind is not going to help. We suggest that the key thing to remember is that if the situation continues and daughter continues to miss a lot of school now, all is not lost. Many students spend more than 2 years getting their A levels and universities will take into consideration personal circumstances when looking at applications. (If university is something she wishes to pursue) If the situation continues and ultimately she needs to take more time to get her A levels, please be assured we have worked with many students at the hospital school who have been in this situation but have ultimately been successful, it’s just taken a bit more time and organisation.

 

 

 

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