My daughter became ill at the beginning of this year and has been given a diagnosis of fibromyalgia. She is in year 10 and has missed so much school and I am worried about her education and the lack of it due to her condition.
This must be very worrying for you all, Year 10 is an important year. If possible we would suggest in the the first instance you talk to the school SENCo about your concerns and see what the school can offer by way of support. If she is missing school for extended periods, 3 weeks or more, then she is entitled to home tuition.
Check this link for more information: https://www.gov.uk/government/publications/education-for-children-with-health-needs-who-cannot-attend-school
However the home school is responsible for ensuring that she is supported to access as much education as she can despite her medical condition.
I need some advice, my son who is 6 has eczema and asthma and food allergies. School are aware of this but it’s a constant battle to get them to do things right for my son even with medical hospital letters. Well there was an incident regarding my son being given extra medicine which the school deny but my son still says happened even now. Well I told school I didn’t want them doing anything for him so I went in for 3 days to do it myself once a day when he’s supposed to be done 3 times a day. Well 2 days later he was given pizza at school for dinner which he’s not allowed to eat as he has an allergy to tomato based food. Which he wears a badge stating and school kitchen and office are aware of this but still happened. I’m not happy now with my son school and I take him home now to feed him and cream him at dinner times and also provide snacks and his own juice as he can’t have at school. I just don’t know what to do as I’m not happy with him there and don’t feel like they dealing with his needs as this keep happening and when I go into complain I get told to take my child out of school and that they do more than enough for my child I just don’t know what else to do.
The situation sounds very stressful at present. I wonder if you could find a way to talk to school about your concerns. Is there a teacher or teaching assistant that you have a good relationship with? If there is perhaps you could request a meeting with the schools special needs co-ordinator or other staff member responsible for pupils with medical needs and ask if this person can also attend. Do you have a clinical nurse specialist at your local hospital? They often have a role in helping schools understand medical needs and how schools can work in partnership with parents. Some will attend meetings with parents at the school. Has the school drawn up an Individual Healthcare Plan? A review of this is a good way to talk about what is and is not working well in school. This can be a way to be both positive in relation to what is going well but also let school know what is not working. If you feel that the situation with school staff has broken down it may be helpful to contact the school governor responsible for special needs and explain your concerns.
I was wondering if you can help me find out if my child has ASD. He is undergoing assessment but when you are a parent you just want to know if there is something wrong. He has just got a statment going through as we speak. He is 3 yrs academically behind and is in year 5. He has difficulties in socialising with anyone he doesnt know. If you look at him on the outside he looks like any other child.I believe he has ASD but need it medically proven. He quiet and withdrawn and he does not have any friends. He is bullied at school due to the lack of understanding and he can't procees things that we take for granted.
Thank you for your enquiry, I am glad to hear that your son's educational needs are being assessed, this will ensure he receives the support necessary for him to achieve academically at school. A diagnosis of ASD is made by the local CAMHS (Child and Adolescent Mental Health Service), there is usually a screening questionnaire for parents/carers, and then an interview with a psychiatrist, sometimes an ADOS assessment is used to ensure an accurate diagnosis. Your GP can refer you to your local CAMHS team.