My son has just been diagnosed with severe obsessive disorder. He already has learning difficulties and has a statement of educational needs. On his recent hospital admission where he was seen by CAMHS and the social worker I was advised that we would need a meeting at school to discuss how we progress things forward. In the meantime I have had to do the professionals work for them. I have contacted the school and worked in partnership with the head of year and also the exams officer in order for my son to get the right entitlement for his upcoming GCSE exams. My son also has to make decisions regarding his future this year and I am of the belief that currently he is not in the best place to make these at this time. I recently visited a college for him and although the course is what he wants to do, I am not convinced that this would be the right place for him due to it being big and also would it be safe for him. I am just at my wits end regarding this. He is currently going to school, but with support in the morning and afternoon, with dropping him off and picking him up. I do not have much support at home and certainly no group that I can talk to regarding my frustration in terms of getting things right for my son and his future.
This really is a stressful time for you all and thinking of the future must be particularly difficult as it is hard to predict how things will develop. You have made the first step in liaising with school and this seems to have enabled some things to be put in place for your son, though obviously it is still difficult for you. In relation to college, our suggestion would be to keep options open. If possible, look at a range of schools and colleges your area, contact the SEN or student disability services, this may help you and your son assess where his needs will be best met. As he has an Education Health Care Plan he should be well placed to access any available support. Support for yourself is very important during this stressful time, Young Minds have a parents phone line: http://www.youngminds.org.uk/for_parents A number of parents we have contact with have found the phone line very helpful. They may also be able to put you in touch with a local support group.
How do schools help children with cystic fibrosis and what support do they get?
I need some advice, my son who is 6 has eczema and asthma and food allergies. School are aware of this but it’s a constant battle to get them to do things right for my son even with medical hospital letters. Well there was an incident regarding my son being given extra medicine which the school deny but my son still says happened even now. Well I told school I didn’t want them doing anything for him so I went in for 3 days to do it myself once a day when he’s supposed to be done 3 times a day. Well 2 days later he was given pizza at school for dinner which he’s not allowed to eat as he has an allergy to tomato based food. Which he wears a badge stating and school kitchen and office are aware of this but still happened. I’m not happy now with my son school and I take him home now to feed him and cream him at dinner times and also provide snacks and his own juice as he can’t have at school. I just don’t know what to do as I’m not happy with him there and don’t feel like they dealing with his needs as this keep happening and when I go into complain I get told to take my child out of school and that they do more than enough for my child I just don’t know what else to do.
The situation sounds very stressful at present. I wonder if you could find a way to talk to school about your concerns. Is there a teacher or teaching assistant that you have a good relationship with? If there is perhaps you could request a meeting with the schools special needs co-ordinator or other staff member responsible for pupils with medical needs and ask if this person can also attend. Do you have a clinical nurse specialist at your local hospital? They often have a role in helping schools understand medical needs and how schools can work in partnership with parents. Some will attend meetings with parents at the school. Has the school drawn up an Individual Healthcare Plan? A review of this is a good way to talk about what is and is not working well in school. This can be a way to be both positive in relation to what is going well but also let school know what is not working. If you feel that the situation with school staff has broken down it may be helpful to contact the school governor responsible for special needs and explain your concerns.