I need some advice, my son who is 6 has eczema and asthma and food allergies. School are aware of this but it’s a constant battle to get them to do things right for my son even with medical hospital letters. Well there was an incident regarding my son being given extra medicine which the school deny but my son still says happened even now. Well I told school I didn’t want them doing anything for him so I went in for 3 days to do it myself once a day when he’s supposed to be done 3 times a day. Well 2 days later he was given pizza at school for dinner which he’s not allowed to eat as he has an allergy to tomato based food. Which he wears a badge stating and school kitchen and office are aware of this but still happened. I’m not happy now with my son school and I take him home now to feed him and cream him at dinner times and also provide snacks and his own juice as he can’t have at school. I just don’t know what to do as I’m not happy with him there and don’t feel like they dealing with his needs as this keep happening and when I go into complain I get told to take my child out of school and that they do more than enough for my child I just don’t know what else to do.
The situation sounds very stressful at present. I wonder if you could find a way to talk to school about your concerns. Is there a teacher or teaching assistant that you have a good relationship with? If there is perhaps you could request a meeting with the schools special needs co-ordinator or other staff member responsible for pupils with medical needs and ask if this person can also attend. Do you have a clinical nurse specialist at your local hospital? They often have a role in helping schools understand medical needs and how schools can work in partnership with parents. Some will attend meetings with parents at the school. Has the school drawn up an Individual Healthcare Plan? A review of this is a good way to talk about what is and is not working well in school. This can be a way to be both positive in relation to what is going well but also let school know what is not working. If you feel that the situation with school staff has broken down it may be helpful to contact the school governor responsible for special needs and explain your concerns.
My grandson who is 11 has just been diagnosed with type 1 diabetes. Unfortunately he is not coping with this very well. He has always had a very bad temper and has been quite uncontrollable at times. Now he has taken to smashing up his room and he is hating school and it's getting more difficult to get him to go, his mother has just managed too. His mother is a single parent and I'm not sure how long her mental health can stay stable. She really needs some help, what can you advise please? If you cannot could you put us in touch with someone that can?
Sorry to hear that your grandson is not coping well with his diagnosis - the specialist nurses for diabetes are a great support for families and schools - as children find it more difficult to deal with a new diagnosis if families feel worried.
I'm looking to find a list of alternative education establishments more suited to my daughter's needs. She has recently received a diagnosis of Autism, and even with support is very unhappy in mainstream school.
The simple answer is that there is not a list of alternative education establishments. Your local authority website should have details of all maintained schools in your area, mainstream and special schools and units. Some specialist units will be based in mainstream school. You may have done this already but we would suggest that you talk to the SENCo at your daughter’s school to see if adjustments can be made. There has been a growing demand for specialist provision for children diagnosed with Autistic spectrum disorders some schools now refer to themselves as serving children with complex needs. There are some independents schools such as those run by the National Autistic Society. In most cases your daughter would need an Education Health and Care Plan to be considered for specialist schools/provision.
You may find these links useful.